Medical
A hope for Matteo and Niccolo
£0 raised of £300,000 goal 0.00%- 0 Donations
- 60 days left
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Matteo (in the photo) and Niccolò are two brothers from Lecce. Both have received the same diagnosis: Lafora disease. I, Tullio Bressanello, president of TempoZero ODV, wanted to organize this fundraiser to give hope to Matteo and Niccolò of accessing the Phase 1/2 Clinical Trial. As of today, we are waiting to know the "recruitment" procedures and the related selections, but it is necessary to be prepared. The donations made in this fundraiser will be used to submit Matteo and Niccolò to every possible therapy to give them hope for the future. Their father Giancarlo Dei Lazzaretti and mother Gabi Greco, aware of the possible scenarios, have authorized me to use the boys' photos and create this fundraiser. The money raised, available in Tempo Zero's bank account, will be sent to the dedicated fund created by the Main Sponsor UT Southwestern Medical Center to support the hospitalization costs of the Lafora disease-affected boys who will be enrolled.
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